Baseline Data Collection
baseline data collection
The baseline data collection materials include four self administered forms, a two‐part telephone interview divided into 16 sections and 19 modules on specific occupations, and a form completed by a mobile phlebotomist.
Actual questionnaires can be accessed through the Sister Study Tracking and Review System (STaRS) 
website.
Computer-Assisted Telephone Interview (CATI)
|
Abbre- viation |
Title | Description |
|---|---|---|
| PX | Personal History of Cancer |
Questions about previous cancer diagnoses, BRCA1/2 testing |
| SX | Sister History |
Questions about all biological sisters, their vital status, histories of cancer, including breast cancer |
| BC | General Health and Breast Conditions |
Questions about overall health, dental health, cancer screenings, breast exams, breast conditions and surgeries |
| RS | Environmental Exposures/ Residential History |
Questions about some of the participant’s residences, including detailed questions about the household and the neighborhood where it is located; includes questions about current residence(s), residence at which participant lived the longest since the age of 20, and the residence where she lived the longest before age 14 |
| FE | Residential Farm Exposures |
Questions for participants who had lived on a farm during childhood or adulthood including history of farm residence, raising of animals, crops, and pesticides |
| PH | Physical Activity, Sun Exposure, and Hobbies |
Questions about physical activities including sports, exercises, and chores around the home or garden, time spent outdoors in daylight and hobbies or crafts done on a regular basis that may involve environmental exposures |
| SM | Smoking |
History of smoking and exposure to cigarette smoke from other people |
| AL | Alcohol |
History and current use of alcohol including beer and other malt beverages, wine, wine coolers, and liquor |
| SL | Sleep Patterns |
Questions about usual and recent sleep patterns, light conditions during sleep, napping, and sleep medications |
| SE | Socioeconomic Characteristics |
Background questions including country of birth, race, ethnicity, sexual orientation, marital status, education, income, parental figures during childhood and their education levels, general economic status and food security as a child, and questions about experiences with stress and coping in the past 30 days |
Actual questionnaires can be accessed through the Sister Study Tracking and Review System (STaRS) website.
|
Abbre- viation |
Title | Description |
|---|---|---|
| OC |
Occupation - |
Questions about current employment status and history of all jobs, military service, and volunteer work that took at least 10 hours per week since the age of 18 |
| OC |
Occupation - |
Questions on work conditions, exposures, schedule, industry, usual activities, specific chemicals and other materials ever used in any of the jobs held, and exposure to computer screens and video displays |
| OC | Occupation Job Modules |
Detailed questions are asked in separate modules for 19 occupations:
|
| PG | Menarche, Pregnancy and Infertility |
Questions about reproductive history, menstrual cycles, planned or unplanned pregnancies, use of different birth control methods |
| HR | Hormones |
Questions about use of birth control methods that involve hormones, including hormonal birth control methods used for contraception, control of menstrual cycles, or other medical reasons, hormone replacement therapy, medical procedures that may stop menstrual periods, current menstrual status and date of last menstrual period, symptoms of menopause, and use of other hormones |
| MC | Medical Conditions |
Questions about medical conditions, and medications taken for these conditions |
| MD | Other Medications |
Questions about all other current medications not previously reported; additional questions on prior use of pain and inflammation medications and antibiotics |
| AN | Anthropometry and Growth and Development |
Questions about current height and weight, during her 30s, teen years, and around the age of 10 |
Actual questionnaires can be accessed through the Sister Study Tracking and Review System (STaRS) website.
Self-Administered Forms
|
Abbre- viation |
Title | Description |
|---|---|---|
| FH | Family History Questionnaire |
Questions about participant’s birth, mother’s experience before and during her pregnancy with the participant, and questions about other biological family members |
| DH | Diet Questionnaire |
The Block 98 Food Frequency Questionnaire assesses current diet |
| PC | Personal Care Questionnaire |
Questions ask about products women may have used during two time periods:
|
| PA | Past 24 Hours Questionnaire |
Women are instructed to complete this questionnaire just before the visit from the mobile phlebotomist. It captures the conditions under which specimens were collected:
|
Actual questionnaires can be accessed through the Sister Study Tracking and Review System (STaRS) website.
Examiner-Administered Form
|
Abbre- viation |
Title | Description |
|---|---|---|
| EX | Examiner Specimen Collection and Measurement Form |
The mobile phlebotomist collects and records biometric measurements including blood pressure, pulse, weight, height, waist and hip circumference |
Actual questionnaires can be accessed through the Sister Study Tracking and Review System (STaRS) website.
|