breast cancer data collection
Information on incident breast cancer and other health conditions is collected via the Annual Health Updates, the Detailed Follow-Up Questionnaires, and through telephone calls, e-mails, or correspondence with the Sister Study Helpdesk. Approximately six months after the reported date of breast cancer diagnosis, women are asked to complete a Breast Cancer Follow-Up Form (BCFF) by mail or respond by telephone (CATI). Topics covered by the BCFF are summarized below. As women in the cohort report breast cancer, we ask their permission to contact their health care providers for retrieval of medical records, pathology reports, and tissue blocks and slides to complement self-reported data.
Questionnaires can be accessed through the links below.
(Requires Adobe Acrobat - Download Here) 
Breast Cancer Follow-Up Forms
Links to all versions of the Breast Cancer Follow-Up (BCFF) questionnaires and Medical Record Report Forms can be found in the table below. For a summary of changes to each BCFF version, please click here. We are currently in the process of making these documents Section 508 compliant. If you need assistance before then please click here to contact us.
| Abbre- viation |
Title | Description |
|---|---|---|
| CA | Breast Cancer Follow-Up Version 1 CATI Breast Cancer Follow-Up Version 2 CATI Breast Cancer Follow-Up Version 3 CATI and Mail Breast Cancer Follow-Up Version 4 CATI and Mail |
Covers these major topics:
|
| MRF | Breast Cancer Medical Report Forms Stage IV breast cancer: (PDF 59 KB) |
Used by medical record abstraction staff to record data obtained from medical records and pathology reports received from women reporting breast cancer and their health care providers. |
