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The Sister Study

breast cancer data collection

Information on incident breast cancer and other health conditions is collected via the Annual Health Updates, the Detailed Follow-Up Questionnaires, and through telephone calls, e-mails, or correspondence with the Sister Study Helpdesk. Approximately six months after the reported date of breast cancer diagnosis, women are asked to complete a Breast Cancer Follow-Up Form (BCFF) by mail or respond by telephone (CATI). Topics covered by the BCFF are summarized below. As women in the cohort report breast cancer, we ask their permission to contact their health care providers for retrieval of medical records, pathology reports, and tissue blocks and slides to complement self-reported data.

Questionnaires can be accessed through the links below.
(Requires Adobe Acrobat - Download Here) exit disclaimer

Breast Cancer Follow-Up Forms

Links to all versions of the Breast Cancer Follow-Up (BCFF) questionnaires and Medical Record Report Forms can be found in the table below. For a summary of changes to each BCFF version, please click here. We are currently in the process of making these documents Section 508 compliant. If you need assistance before then please click here to contact us.

Title Description

Breast Cancer Follow-Up Version 1 CATI
(PDF 146 KB)

Breast Cancer Follow-Up Version 2 CATI
(PDF 134 KB)

Breast Cancer Follow-Up Version 3 CATI and Mail
(PDF 43 KB)

Breast Cancer Follow-Up Version 4 CATI and Mail
(PDF 66 KB)

Covers these major topics:

  • Verification of previously reported diagnosis information (e.g. diagnosis date, invasiveness, ductal or lobular origin)
  • Lymph nodes and metastases
  • Treatment (surgery, chemotherapy, radiation therapy, other treatments and clinical trial participation)
  • Psychosocial factors

Breast Cancer Medical Report Forms

All breast cancer
(PDF 125 KB)

Stage IV breast cancer: (PDF 59 KB)

Medical Report Form Archive

Used by medical record abstraction staff to record data obtained from medical records and pathology reports received from women reporting breast cancer and their health care providers.



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