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The Sister Study

Other Cancers Data Collection

Confirmation of Non-Breast Cancer Diagnoses

Approximately six months after the reported date of diagnosis, participants reporting non-breast cancers (except non-melanoma skin cancers) are asked to provide a copy of the diagnostic pathology report (or related medical documentation) or for permission to request this diagnostic documentation from their health care provider. More detailed medical records may be requested for specific nested studies. Tissue blocks and slides are also requested for ovarian, fallopian, and peritoneal cancer diagnoses.

This data collection for non-breast cancers began in 2010, when participants reporting lung, ovarian, or colorectal cancer were contacted with a request for authorization to obtain their pathology report, or if preferred, to send a copy of their pathology report to the Sister Study. In 2011, similar contact was initiated with participants reporting all other types of non-breast cancers (except non-melanoma skin cancer).

Pathology reports are abstracted onto a standard Other Cancers Medical Report Form, and the information is used to validate the self-reported diagnosis, collect information on cancer type and stage, and to obtain additional diagnostic information. Information abstracted includes:

Tumor characteristics
Lymph node involvement
Metastasis

The abstraction form can be accessed through the links below.
(Requires Adobe Acrobat - Download Here) exit disclaimer

Other Cancer Medical Report Form

Link to the Medical Report Form can be found in the table below. We are currently in the process of making this document Section 508 compliant. If you need assistance before then please click here to contact us.

Abbre-
viation
Title Description
OX

Other Cancer Medical Report Form
(PDF 88 KB)

Used by medical record abstraction staff to record data obtained from pathology reports received from women reporting cancer cases other than breast or non-melanoma skin and/or their health care providers

 

 


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