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resources
The following websites can give you more information about breast cancer and services that may be helpful to you or your loved ones. This is not a complete list of websites relating to breast cancer. The Sister Study gives these links for your information, not as an endorsement.
American Cancer Society
(www.cancer.org )
Website for the American Cancer Society, with links to basic information about breast cancer, breast cancer research, and how to take action through patient support, advocacy, and increased awareness. You can also call toll-free 800-ACS-2345 (800-227-2345) for more information.
Centers for Disease Control and Prevention (CDC) Breast Cancer and Mammography Information
(https://www.cdc.gov/cancer/nbccedp/screenings.htm)
Find out where you can get a free or low-cost mammogram or Pap smear. To learn more about CDC related cancer programs you can contact them toll-free at 800-232-4636 or e-mail them at cdinfo@cdc.gov.
Día de la Mujer Latina, Inc.
(http://www.diadelamujerlatina.org)
Since 1997, Día de la Mujer Latina, Inc. has provided Latinas with free or low cost breast and cervical cancer education/screening, HIV tests, vision tests, STDs tests, diabetes screening, pregnancy tests in addition to domestic violence education. These Latinas are reached by way of one-day health fiestas across the country. These community based health events are widely anticipated in the Latino community and Día de la Mujer Latina has succeeded in eliminating some of the cultural and system barriers to access to care within this population.
FORCE (Facing Our Risk of Cancer Empowered)
(http://www.facingourrisk.org)
FORCE is a 501 (c) 3 non-profit organization and website founded by Dr. Sue Friedman after her own diagnosis of breast cancer at the age of 32. Their website provides help and direction to women at risk for hereditary breast and/or ovarian cancer, as well as information about options for managing and living with these risk factors. You can call their toll free Helpline at 866-288-RISK (7475) or e-mail them at info@facingourrisk.org.
KidsHealth for Kids: Breast Cancer Information
(www.kidshealth.org/kid/grownup/conditions/breast_cancer.html)
Gives information for kids on breast cancer. Word choice is simpler than in most breast cancer sites for adults.
Living Beyond Breast Cancer
(www.lbbc.org)
The Young Survivors Network of Living Beyond Breast Cancer provides a place for young women diagnosed with breast cancer to find information, support and friendship. The Young Survivors Network hosts a series of educational meetings in the Philadelphia area that address issues relevant to women who have been diagnosed with breast cancer and are 45 years of age or younger. Each meeting features qualified experts who address specific topics such as diet and nutrition, fertility and pregnancy, breast cancer genetics, sexuality, intimacy and body image. Call them at 610-645-4567 for more information.
National Breast Cancer Coalition
(www.breastcancerdeadline2020.org)
A national grassroots breast cancer advocacy organization with over 70,000 individual members. Gives information on legislative campaigns and current programs, including their intensive science course for breast cancer advocates, Project LEAD. You can call them toll-free at 800-622-2838 to find out more.
National Cancer Institute
(www.cancer.gov)
Provides general information on cancer, cancer treatment, detection, prevention, genetics, supportive care, and a toll-free hotline number, 800-4-CANCER (800-422-6237), to find answers to questions about cancer.
Link to NCI Breast Cancer Booklet: What You Need to Know About Breast Cancer
National Library of Medicine's MedlinePlus breast cancer information
(www.nlm.nih.gov/medlineplus/breastcancer.html)
A service of the US National Library of Medicine and the National Institutes of Health. Gives links to latest news in breast cancer research. Also has many interesting interactive tools and general information about breast cancer.
Redes En Acción
(www.redesenaccion.org)
The National Hispanic/Latino Cancer Network is a National Cancer Institute-funded initiative to combat cancer among Latinos. A multi-faceted approach to cancer prevention and control, Redes En Acción is building a nationwide network of community-based organizations, research institutions, government health agencies and the public. Core activities include promoting training and research opportunities for Latino students and researchers, generating research projects on key Latino cancer issues, and supporting cancer awareness activities within the Latino community.
Sharsheret
(www.sharsheret.org)
Provides culturally sensitive support to young Jewish women who are newly diagnosed with breast cancer, as well as to those facing the risk of developing breast cancer, and offers related resources for Jewish communities and health care organizations. Sharsheret, Hebrew for "chain," was founded in 2001 by Rochelle Shoretz, a former Law Clerk to United States Supreme Court Justice Ruth Bader Ginsburg, who recognized the need for such an organization after her own diagnosis at age 28. They can be contacted toll-free at 866-474-2774.
Silent Spring Institute
(www.silentspring.org)
Silent Spring Institute is a non-profit organization dedicated to researching the links between women's health and the environment. Includes information about the Cape Cod Breast Cancer and Environment Study and the Newton, Massachusetts Breast Cancer Study.
Sisters Network, Inc.
(www.sistersnetworkinc.org)
The first and largest African American breast cancer support and survivorship network in the country. Their mission is to increase local and national attention to the devastating impact that breast cancer has in the African American community. You can call them toll-free at 866-781-1808.
Susan G. Komen for the Cure
(ww5.komen.org)
Site provides comprehensive information on Komen "Race for the Cure" events and Komen research grants and funding. You can call them toll-free at 877-GO-KOMEN (877-465-6636).
The Young Survival Coalition
(www.youngsurvival.org)
The only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities, and to persuade them to address breast cancer in women 40 and under. Contact them by calling 877-972-1011.
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