Privacy Policy

This Privacy Policy explains how the Sister Study collects, uses and discloses personal information of its customers, prospective customers, and visitors to its website.

Collection of Personal Information

Information collected directly from you: We may collect personal information directly from you, for example through a web form or when you contact us for participant support. Personal information, we collect directly from you may include first and last name, address, email address, and phone number.

Information collected from your device: Our website may use tracking technologies such as cookies, web beacons, pixels, and other similar technologies to automatically collect certain information from your device, including for example your browser and operating system information, referring website address, and other information about how you interact with the website. Our website may also use cookies to personalize your experience and enable certain features such as keeping track of what questions you complete for your annual surveys. You may disable cookies in your web browser however parts of our website may not function properly. More information about blocking and deleting cookies is available at http://www.allaboutcookies.org.

Our email campaigns may also use tracking technologies such as web beacons, pixels and other similar technologies to automatically collect certain information such as your IP address, browser type and version, and email engagement statistics. Information collected from our advertising partners: We may collect personal information about you from our advertising partners. Personal information we collect from our advertising partners may include your demographic information and use history.

Use of Personal Information

We use information collected directly from you to provide you with customer service and support, and other relevant information.

Disclosure of Personal Information

We may use third-party service providers to assist us with providing and marketing our products and services to you and we may share your information with such third parties for these limited purposes.

• We use Constant Contact for our email marketing and text message communications. For more information about how we may use your information with Constant Contact and the information that may be collected through our email campaigns, see Constant Contact’s Customer Data Notice available at https://www.constantcontact.com/legal/customer-contact-data-notice.
• We may also share your personal information if necessary to comply with applicable laws and regulations, to respond to a subpoena, search warrant or other lawful request for information we receive, or to otherwise protect our rights.

Email and Text Message Communications

If you wish to unsubscribe from our email campaigns, please click on the Unsubscribe link at the bottom of any marketing email sent from us. If you wish to stop receiving text messages from us, reply STOP, QUIT, CANCEL, OPT-OUT, or UNSUBSCRIBE to any text message sent from us.

Your Privacy Rights

You may have the right to request access to the personal information we hold about you, to port it to a new service, or to request that your personal information be corrected or deleted. To exercise any of these rights, please contact us at 877-474-7837.

Changes to This Privacy Policy

We may update this Privacy Policy at any time. Please review it frequently.

Contact Information

If you have any questions about this policy or our privacy practices, please contact us at 877-474-7837.

Terms and Conditions

The Sister Study ("Sister Study" "we", or "us") operates a mobile messaging program (the "Program") subject to these Mobile Messaging Terms and Conditions (these "Mobile Messaging Terms"). The Program and our collection and use of your personal information is also subject to our Privacy Policy general terms of use agreement. By enrolling, signing up, or otherwise agreeing to participate in the Program, you accept and agree to these Mobile Messaging Terms and our Privacy Policy our general terms of use agreement.

1. Program Description:

We may send promotional and transactional mobile messages in various formats through the Program. Promotional messages advertise and promote our products and services and may include health update reminders, study findings, new study opportunities, and health checks. Mobile messages may be sent using an automated technology, including an autodialer, automated system, or automatic telephone dialing system. Message frequency will vary [but will not exceed 3 messages per month]. You agree that we, our affiliates, and any third-party service providers may send you messages regarding the foregoing topics or any topic and that such messages and/or calls may be made or placed using different telephone numbers or short codes, except in connection with marketing purposes. We do not charge for mobile messages sent through the Program but you are responsible for any message and data rates imposed by your mobile provider, as standard data and message rates may apply for short message service and multimedia message alerts.

2. User Opt-In:

By providing your mobile phone number to us, you are voluntarily opting in to the Program and you agree to receive recurring mobile messages from us at the mobile phone number associated with your opt-in, even if such number is registered on any state or federal "Do Not Call" list. You agree that any mobile phone number you provide to us is a valid mobile phone number of which you are the owner or authorized user. If you change your mobile phone number or are no longer the owner or authorized user of the mobile phone number, you agree to promptly notify us at 877-474-7837. Your participation in the Program does not require that you make any purchase from us and your participation in the Program is completely voluntary.

3. User Opt-Out and Support:

You may opt-out of the Program at any time. If you wish to opt-out of the Program and stop receiving mobile messages from us, or you no longer agree to these Mobile Messaging Terms, reply STOP, QUIT, CANCEL, and/or OPT-OUT.

Privacy

General information

Making sure that all information stays private is of great importance to us. You may visit the Sister Study website without providing any personal information, such as your name, address, or e-mail address. If you choose to provide such information, all information you give will be kept private and confidential. The Sister Study will not share identifying information with others.

When visitors send e-mail messages containing personal information, study staff responds to the letters and files them. Only designated staff members requiring access to the e-mails to respond may view or answer them.

While we take every step to protect the Sister Study website and prevent others not associated with the study from accessing or interfering with our files, we cannot assure that such tampering will not occur. Furthermore, if you have linked to the Sister Study website from another website, please check the other site's privacy policies before providing any personal information to them.

Web information

We do collect information about the number of visitors to the Sister Study website. This information is used only to help us understand what parts of the website are most often used. We need this information to help keep the website current and of the best quality.

We will not share lists of names of people who contact this site, send e-mails or who enroll.

Federal Privacy Act

The Sister Study is sponsored by the National Institute of Environmental Health Sciences (NIEHS) which is authorized to conduct this research by legal authority number 42 USC 285l.